Wednesday 1 February 2012

reminder. happy but hard.

I found myself poking through some old pictures and videos today after getting the news that Mylo's genetic testing all came back negative.  No Fragile X, no Prader-Willi, those were the two big, scary ones we were worried about.  No, it seems it is only the devil we know that we are dealing with.  Autism.

The good news got me to thinking about a month period of M's life, I think he was about 8 or 9 months old where he was grooving right along, sitting up, babbling, smiling, making AWESOME eye contact and saying dada.  Honestly, I had forgotten that he did any of that, as it was so short-lived.  I vividly remember him saying dada, but until I watched this video I had forgotten that he used to look at me for more than half a second and give me the most exquisite smiles and giggles. He SAW us, he connected with us, it makes me pretty sad that I didn't cherish it more when I had it.  Had I known then what I know now, I would have held on for dear life. I wanted to show you what our Mylo was like before he slipped away into his private world.  Sometimes he still comes to visit, but we sure do wish we could get him to stay.  Only love.

1 comment:

  1. I love that video. Glad to hear about the genetic testing results (although I would have been surprised if he'd had Fragile X since he just doesn't look like that to me). xox