learning to be comfortable being uncomfortable

I've had a few other blog post ideas rolling around in my head this week but I've decided to put them on the back burner for the moment so I can take this opportunity to express my gratitude, thanks, love and WOOT WOOT for some very special people.

I'm sure most of you that actually read my blog have seen the facebook page that was set up yesterday for Mylostones.  This was not my doing.  A few amazing women in my life took a step back, assessed the situation, recognized our need and then did something about it.   wow.

First off, I will say that it blows my mind, the selflessness, the kindness and the plain old fashioned love that I have some how acquired in my life. Most days I don't feel very deserving of such things but today, I honour these women and thank them for myself and for my husband and most importantly for the Mylo.

I do have to be frank though, as you knew I would.

The fundraising, the putting ourselves out there, the admission that we need help, it all makes me pretty uncomfortable. It kind of feels like admitting defeat or admitting we are not doing a good enough job. Not that I wouldn't do it for a friend in need in a heartbeat, but it just feels very different on this side of the fence.  I've done some serious introspection over this, in fact, I spent most of last night awake, agonizing over whether this was the right decision.   I still don't have a solid answer to that question, but what I do know is this.

us three. love.

My son is the single most important aspect of our lives, we would go to the ends of the earth and back if it would mean vanquishing his symptoms.  We will fight for him, we will learn for him, we will sacrifice for him and I will bloody well learn to tolerate feeling uncomfortable for him.  So thank you, one and all for supporting us, for listening to us and for loving us.  We have only love for all of you.