Saturday 7 April 2012

babblefish

It was the best of times, it was the worst of times.  Man, it has been a roller coaster couple of weeks. A recap is in order.

beauty
Three weeks ago M and I started on the GF/CF diet.  Overall it is going fairly well, though we are having to do a lot of fine tuning and elimination to pin point the foods that agree and don't agree with his gut.  As a result,  we have had countless full on meltdowns and days long tantrums, to the point of making the 'Hail Mary' decision to take M to the ER at Children's hospital (a fruitless, humiliating and disheartening experience which I may or may not write about at another juncture).

We switched him from high dose fish oils to a pure cod liver oil, as, after careful research we found much evidence that it was a key factor in biomedical improvements in ASD.  As a result of both dietary and supplement tinkering, we have seen marked improvement in eye contact and M is now 'asking' for our help, which has never happened before.  He holds his hands out so we can take them and help him to do whatever crazy stunt he has planned.  There are many.  The poor bugger has already had two major face plants this weekend alone, one of which has left a massive red and abraded goose egg in the middle of his forehead.  You will see it in all it's glory in the video below.

What else?  My boy spontaneously decided to tackle walking up stairs, unassisted, and not on all fours.  Just sorta happened and lord was it magical to see.  We were so proud, so in turn he was so proud.  It was just a big mess of pride and glee.  He didn't face plant doing it either.  :)

I have saved the very best for last.  A little back story on this if you'll oblige.  I picked up one of Jenny McCarthy's books at Value Village out of morbid curiosity and perhaps with the vague hope that I would discover something useful in her experience with ASD.  The forward of the book is written by a Pediatrician who's son is autistic. He implemented all sorts of biomedical strategies to try to help him.  I am paraphrasing here, but the gist of one paragraph was something along the lines of  "We started him on the GF/CF diet and right away eye contact returned.  Then we started him on cod liver oil and within days we saw the return of language."  Being the gross skeptics that we are, as I read those words to R, we both scoffed mightily and agreed, if only it was that simple.

I am not saying I should stick both my feet in my mouth here, but what I am saying is, a week after starting M on cod liver oil, we have the return of the babblefish!  So, you be the judge.  Dadadada, didididididi, babababa....well, you get the point, sounds we have not heard for over 6 months have resurfaced.  Hallelujah.  It is the most beautiful sound I have ever heard.  I must try not to get too worked up over it though as this marks the third time his dadadas have come and gone in his short life.  I want nothing more than for them to stay forever and continue to progress, but I have to be cautiously optimistic instead.  Mylo continues to amaze us everyday.  We are so lucky.  Oh and props to Jenny McCarthy even if she is a bit of a douche.  Only love.

2 comments:

  1. I can't wait to hear him yammer again! I'm so happy for all of you. Sending you all my love from afar. xoxox

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  2. Such a wonderfully amazing story teller!!! Music to the ears!!

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