Sunday, 25 March 2012

blog block be damned.

Remember me?  I did such a fabulous job of blogging for the first month and then, as seems to be a common theme in my life, I ended up becoming somewhat less fabulous.   I attribute it to 'blog block', which in my eyes must be akin to writers block.  But really, I think I just haven't had much to say or perhaps lacked the inspiration to say it if I did.

What's been happening?  I guess a lot really.   After nearly a month and a half of waiting, our funding agreement finally arrived.  Are we excited about this?  Yes.  And no.  Yes, because this means we can now officially start hiring therapists for Mylo and get this 'early intervention' program show on the road.  No, because seeing the funding figures first hand has also served to shine a glaringly, bright light on the funds we will not have, emphasizing the services we won't be able to access for Mylo.  It's a good news, bad news kind of thing but for now lets just focus on the good.

We start interviews this week to find M a Behaviour Consultant (he or she will be our main 'go to' person for assessing and setting up M's therapy and intervention program.   And, if we go with an agency type set up,  they will also help us to find, interview and hire Behaviour Interventionists to work with Mylo and implement his therapy program).  We are seeing two this week, both of whom are female.  It's the strangest thing, and don't misunderstand me, I'm no woman hater, but I just have this overwhelming feeling that Mylo's BC should be a male.  I can't really explain why, just a gut thing.  Even stranger is, I told R I wanted to look for a man and he didn't even really question it, or my reasons for feeling strongly about it.  I think he may feel it too.  *insert twilight zone music*   Anyway, the field seems to be dominated by women.....you know we are the nurturing ones after all...ha!  But, I will keep looking and insisting and if our BC is meant to have a penis, then it shall be so.

Also in the good news, couldn't possibly be better news department is, that our little rockstar can now fully spoon feed himself.  It's a HUGE deal.  He's a HUGE deal.  It has taken much practice and perseverance but he's got it!  Granted it is a little backward and awkward looking but who cares, the focus, intent and sheer love of food, get the job done.  Video proof attached.

Lastly, I want to bring April the 2nd to your attention.  Yes, it is the day after April Fool's Day, but all silliness aside, it also happens to be World Autism Awareness Day.  WOOT!  That's right folks, on that day, people affected by Autism, be it personally, or through someone they love, are going to LIGHT IT UP BLUE for Autism awareness.  Have a look at http://www.autismspeaks.org for details and to see just how vast a reach Autism Speaks has.  We are lighting our home up blue on April 2nd and our local Family Place, who know, love and support Mylo are going to participate as well.  I think that is pretty RAD.

Awareness is the first step to opening the eyes, hearts and minds of the world to Autism and it's epidemic proportions.   As a mom touched and affected by it daily, my heart encourages you to LIGHT IT UP BLUE too....even if it's just something small and personal.   Mylo thanks you.   Only love.

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